Healthcare Working Group (HCWG) Patient Member Subgroup Meeting
August 17, 2018
Chat: https://chat.hyperledger.org/channel/healthcare-wg (you can use your LFID to login)
Donor Milk Lab Github: https://github.com/hyperledger-labs/milk-donor
HCWG Wiki: https://wiki.hyperledger.org/groups/healthcare/healthcare-wg
Public lists: https://lists.hyperledger.org
Hyperledger class: Blockchain for Business - An Introduction to Hyperledger Technologies
Linux Foundation Antitrust reminder: https://www.linuxfoundation.org/antitrust-policy
Bottom Line Up Front: First half was a conversation with Naomi Bar Yam from Mothers Milk Bank NE, Boston on some of the processes related to the donor milk ecosystem such as donor screening, milk security in transport, etc. Overall Naomi feels that processes that are currently in place are effective. Her two major pain points are thinking about scalability and standards with growth as well as a lack of feedback from hospitals on the babies that get the milk.
The second half of the meeting was to discuss the Hyperledger Composer build that has been started by Angela Courtney and to collect feedback and initial thoughts
Next steps are to get feedback from Rapid Healthcare on both the conversation with Naomi and the build. We will try to connect with Naomi again to discuss participants in the system, regulatory needs/guidelines, information management to ensure that the network that is built is compliant and also get more clarity on the information/feedback they would like to see from NICUs
Attendees: Marissa, Pam Erickson, Angela Courtney, Michael Tran, Markus, Rich Bloch, Jeff Stollman, Michael Johnson, Marta Piekarska, Steven, Ben Djidi, Rayne (list incomplete)
Guest speaker: Naomi Bar Yam from Mothers Milk Bank NE, Boston & immediate past president of Human Milk Bank of North America
The aim of the patient subgroup is to:
Every Milk Bank is a stand alone and sets their own process
Secure storage through process
What is biggest paint point?
No documented case of infant harm by donor milk
Is all milk going out the same? Could milk be differentiated for the different needs of infant patients?
There is powerful research to be done on human milk
Dr. Angela Courtney
The build for the donor milk project has started and is readily available to try
Angela took us through the network to show how we can identify different participants, assets and transactions in the network
It will be good to add more explicit role for participants for regulators/public health department We have also added to the business case the additional participants abd attributes we’ve wanting to include for assets: https://wiki.hyperledger.org/groups/healthcare/donor_milk_transparency_and_traceability