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groups:healthcare:connecting_health_data_across_silos_for_diagnostics_and_treatment [2018/07/17 13:51]
Marissa Iannarone
groups:healthcare:connecting_health_data_across_silos_for_diagnostics_and_treatment [2018/07/21 21:22]
Marissa Iannarone Added link to the Donor Milk Use Case page
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 The MVP use case with this functionality could be with 4 players: The MVP use case with this functionality could be with 4 players:
   * Patient   * Patient
-  * Healthcare entity A (hosptial, lab, etc)+  * Healthcare entity A (hospital, lab, etc)
   * Healthcare entity B   * Healthcare entity B
   * Researcher   * Researcher
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   * Update order status event------>​updates lab/ procedure event   * Update order status event------>​updates lab/ procedure event
   * Scrap vehicle event------>​ deceased   * Scrap vehicle event------>​ deceased
 +
 +We've confirmed that we will be working on a open source build. Tony Little suggested looking at the Davinci project from FHIR that that provides an implementation framework for others to follow: [[http://​www.hl7.org/​about/​davinci/​index.cfm?​ref=common]]
 +
 +We will also want to work with the Hyperledger ID team to understand better what they have thought of/built already. Once we have a journey map completed, we can loop them in and walk through it with them to gain insights. ​
  
 **Current Solution** **Current Solution**
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 Take a look at how UK NHS is solving this same problem: https://​www.engadget.com/​2018/​06/​29/​britain-nhs-anonymous-health-data-privitar/​ Take a look at how UK NHS is solving this same problem: https://​www.engadget.com/​2018/​06/​29/​britain-nhs-anonymous-health-data-privitar/​
  
-We will also want to work with the Hyperledger ID team to understand better what they have thought of/built alreadyOnce we have journey map completed, we can loop them in and walk through ​it with them to gain insights+We have reviewed [[https://​medicalchain.com/​en/​|Medicalchain]] (Hyperledger project) and believe that they are targeting a very similar solution to what is laid out below. After reviewing the white paper, we do see possible opportunities for a POC to be built that would support Medicalchain work in the following areas: 
 +  * AI - machine learning could be inserted into the network - Anton recommended looking at [[https://​ada.com/​|ADA]] 
 +  * Chain of custody (which appears to be a gap according to the white paper 
 +  * Researchers able to engage with patient data via the '​market place' component laid out in the white paper 
 + 
 +We are waiting to hear back from Medicalchain on the following questions ​and are hopeful that a representative will be on the 7/27 HCWG call so that we can determine whether ​it makes sense to move forward ​with the use case stated above. 
 +  * If Medicalchain has implemented their code onto the main block chain at this time?  
 +  * Where their struggles, if any, may lie in implementation of the project.(This may be a question for them directly.)
  
 _If there are systems in place today which automate the above business problem/​opportunity,​ please explain what exists._ _If there are systems in place today which automate the above business problem/​opportunity,​ please explain what exists._
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 When thinking of this individual-owned health data record, we have identified 2 major use cases to explore (each of these with endless user journey and "sub use cases":​ When thinking of this individual-owned health data record, we have identified 2 major use cases to explore (each of these with endless user journey and "sub use cases":​
-* Clinical trials +  ​* Clinical trials 
-* Sharing data across healthcare entities +  * Sharing data across healthcare entitiesEmergency room visit - how can an individual bring any relevant data with you to an emergency visitAcute incident that requires both in-network and out-network provider visits/​interventions ​ 
-  * Emergency room visit - how can an individual bring any relevant data with you to an emergency visit +
-  * Acute incident that requires both in-network and out-network provider visits/​interventions+
  
 From here we need to deconstruct these use cases to make the work more actionable (we can't boil the ocean) - journey mapping seems like a logical next step - identifying the steps that a user would take along the way to get the expected results - then at each step of the way we can dig into the challenge areas below. From here we need to deconstruct these use cases to make the work more actionable (we can't boil the ocean) - journey mapping seems like a logical next step - identifying the steps that a user would take along the way to get the expected results - then at each step of the way we can dig into the challenge areas below.
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 Initial thoughts on journeys to map: Initial thoughts on journeys to map:
 +
 * someone signs up to engage in our platform in order to manage data from and engage in a clinical trail * someone signs up to engage in our platform in order to manage data from and engage in a clinical trail
 * someone is looking to manage data from a treatment protocol that requires visits/​interventions with multiple physicians * someone is looking to manage data from a treatment protocol that requires visits/​interventions with multiple physicians
 * Opt-in for laboratory sample results to be leveraged to inform patient treatment protocols or diagnosis * Opt-in for laboratory sample results to be leveraged to inform patient treatment protocols or diagnosis
 +
 +Patient Centered Data mapping provided by Tony Hussain on 7/6: {{ :​groups:​healthcare:​screen_shot_2018-07-06_at_12.17.54_pm.png?​200 |}}
 +
 +**Other Use Cases Being Considered by Patient/​Member Subgroup**
 +[[groups:​healthcare:​donor_milk_transparency_and_traceability|Donor Milk Transparency and Traceability]]
  
groups/healthcare/connecting_health_data_across_silos_for_diagnostics_and_treatment.txt · Last modified: 2018/07/24 23:53 by Marissa Iannarone